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Friday, March 23, 2018

ALICE Training and Why We March

For many years I have helped in school classrooms as a parent volunteer and a guest art teacher.  In the fall of 2017, I began substitute teaching as well.  Part of the process of becoming a substitute teacher is A.L.I.C.E. training.  This is an active shooter response and the acronym means Alert, Lockdown, Inform, Counter, Evacuate.

When I go into a classroom to teach, before I even look for a instructor’s notes, I am ALERT.  I check that doors can lock, that windows can open.  I check to see if the drop from those windows is a few feet or a couple of floors. I look for closets that can be secured and walls that can hide little students.  I look for the emergency room packet or backpack, and only then can I begin to think of teaching.

I've been present in classrooms while small children try to be very quiet, very still during LOCKDOWN drills.  Once as a parent volunteer, I was alone in the hallway as a drill began and the school secretary pulled me quickly into the office, locked the door and turned out the lights.

I know that when I teach I can use the walkie-talkie at my belt to INFORM the school secretary and other teachers the location of a shooter.  I know that the secretary can inform the entire school via intercom which hallways and doors are currently safe choices for escape.

I know that in many cases the safest choice is to EVACUATE out the windows or doors if a shooter is inside the school. I know I will have to help the students get out quickly.

Because of A.L.I.C.E. training I know that if a shooter has gotten inside the room we must COUNTER.  We can throw books, backpacks, and chairs to distract and potentially disarm a shooter.  Teachers and older students have even been taught to swarm.  We have been taught to run at the shooter and take them down to the floor.  It is very hard to shoot a moving target and we have a chance to stop this before more people are harmed. 

High school students and teachers have been taught this lesson for years.

So why are folks surprised that we are marching tomorrow in DC?   Marching for those students that died in Florida and so many other places. 

You taught us to counter.

You taught us to swarm.

You taught us our actions could save lives. 

Tomorrow we act.

Wednesday, March 14, 2018

The Many Hats We Wear

This is the 5th year of the Cinderblocks patient-led conference in Grantsville, MD.  We meet each May and renew our will to fight for better healthcare for us all.  This year our theme is 'the many hats we wear.'  I was inspired to choose this theme for a few reasons.

One reason is I have painted about this concept before when Howard Liebers joined The Walking Gallery in year one. 

One reason is Danny van Leeuwen from Health Hats.  Last year he attended Cinderblocks and met Danny McGinnest Jr.  an artist member of The Walking Gallery who designed a lovely logo for Health Hats on his way to our event. Danny van Leeuwen wrote a great explanation of Cinderblocks4 that I recommend everyone read. 

Another reason I chose this theme is that so many of us who work on change in healthcare have so many job roles.  We use every tool, every task, to further the cause.

Who am I?

I am a thought leader in healthcare focused on patient data access.

I am scout leader teaching young people about the importance of bees during our last meeting.

I am Church Council President picking up food donations so that we can continue to offer a free community meal each Sunday.   

I am a business leader helping run a town-wide yard sale so local folks can raise some funds this May.  That extra income could be the difference between paying the mortgage or going into default.

I am a Member of Woodmen’s Chapter 41 and I am helping run a school drive for needed supplies like bleach wipes so teachers can stem the tide sickness in schools.

I wear so many hats, but so do many of you.   This year at #Cinderblocks5 we want to hear about the many hats you wear.  We want to recognize that to change the world, you must bring your whole self to the table.

If you would like to help sponsor our event go here:

Thank you, 
Regina Holliday 

Sunday, August 13, 2017

The #HIT100 and Jess Jacobs

One year ago today, I was at the maker fair in Accident, Maryland. 3-D printing, children painting, and Lego creations surrounded me.  In this maelstrom of creativity, I learned that Jess Jacobs had died.  Funny, delightful, caring Jess was gone. 

In the year hence, we dedicated a room in honor of Jess in Salt and Pepper Studios: Home of the Walking Gallery.  People all over the country made donations in her honor.  I placed flowers on our front walk dedicated to her memory.

Yesterday, Jess's sister Lauren Jacobs was able to visit the studio.  I was honored to show her Jess’s room.  Lauren remarked on how much Jess would have loved the room.  I built a large display case full of Jess’s art within the doorway frame to the adjoining bedroom.  I think there is a kind of poetry in that.  Jess lives on in a doorway between this room and the next.

Another local artist named Ashley Folk made the header on the case.  She created a plaque that depicts the name “Jess Jacobs” in nails and string. Nails and String: a perfect metaphor.   Our Jess endured such pain in her 29 years.  When I think nails, I think of smashed thumbs.  I think of the nail that went through my bare foot at 10 years of age while walking.  I think of Jesus on the cross.  I think of nails and it leads me directly to thoughts of shocking and surprising pain.  I look at the name “Jess Jacobs” on this plaque and see so many nails.  Each nail could represent a treatment, a hospitalization, or another day of pain. 

But then again, there is the string.  This string glued firmly, intertwined around all those nails to create the name “Jess.”  For that is what Jess did.  She entwined us all.  I met Jess on twitter long before I met her in person.  She was one of the #HIT100 in 2013.  She was a powerful patient leader that represented so many in health information technology without a voice.

This year during the #HIT100 voting in July, Ross Martin said we should nominate Jess.  When the list came out Chuck Webster made 3-D printed key fobs for all of the 100 that wanted one.  When my fob arrived, I first let it rest a few moments in #TheWalkingGallery of Lego.  Jess helped make so many of those figures.  Then I gave it to Jess.  I put a key ring on it and placed it in the display case.  It looked a little bit lonely, so I put my husband Fred’s keys on the fob. 

Under the keys and fob, there is a blue rose and a blue button.   The blue rose represents the thought that Jess will always be with us.  The blue button means we always fight for patient access to data, just like Jess. 

Sunday, July 23, 2017

The Walking Gallery: Year 7

This is the seventh year of the Walking Gallery of Healthcare.  We now number 440 members walking around the world with patient story paintings on our backs.  We are attending medical conferences where often there isn’t a patient speaker on the dais or in the audience. We are providing a patient voice, and by doing so, are changing the conversation.

An artist or artists interviews medical professionals and lay individuals to form a patient centric narrative. The artist then creates representational imagery and paint that picture story upon the business jacket of the provider of the narrative account. The provider of the patient story aka “Walker” wears the jacket to medical conferences and events in order to disseminate the patient story to a large group of policy minded attendees and to represent the individual patient voice in venues where they are underrepresented. Further, both artist and walker will support the spread of the story and image via social media.

As of July 2017, 440 unique Walkers have joined the Gallery wearing 485 jackets.  The Gallery has representatives on six continents, but the majority of Walkers reside in the US. One artist creates the majority of the art, but new artists are frequently joining the movement.  The Gallery is promoted heavily on twitter, facebook and personal blogs.   Its widening appeal within the health conference community is creating a new space for patients at such events.

If you are interested in joining the Walking Gallery here is the info:

If you would like to help fund the movement: 

Here is a short film about the movement:

The names of the Artists of The Walking Gallery followed by the quantity of jackets they have painted:  
1. Regina Holliday, 419 jackets
2. Isaac Holliday, 1 jacket
3. Becca Price, 1 jacket
4. Miriam Cutelis, 1 jacket
5. Ess Lipczenko, 1 jacket
6. Ben Merrion, 1 jacket
7. Courtney Mazza, 8 jackets
8. Michele Banks, 1 jacket
9. Megan Mitchell,1 jacket
10. Robert J. Filley, 3 jackets
11. Anita Samarth, 1 jacket
12. Mary Welch Higgins, 2 jackets
13. Richard Sachs, 2 jackets
14. Jonah Daniel,  1 jacket
15. Fred Trotter, 1 jacket
16. Leela, 1 jacket
17. Gayle Schrier Smith, 1 jacket
18. Moira Simms, 1 jacket
19. Joan Holliday, 1 jacket
20. Adalyn, 1 jacket
21. Chris Chan, 1 jacket
22. Amy O'Hanlon, 1 jacket
23. Vera Rulon, 2 jackets
24. Jessica Nicula, 2 jackets
25. Nikai, 1 jacket
26. Deonm, 1 jacket
27. Daquane, 1 jacket
28. Olivia Dias, 1 jacket
29. Donnell Bonaparte, 1 jacket
30. Hazel F., 1 jacket
31. Rachel Fields, 1 jacket
32. Zoe Carr, 1 jacket
33. Thomas Richardson, 1 jacket
34. Tamela Mack, 1 jacket
35. Julia Anderson, 1 jacket
36. DJ Hamilton, 1 jacket
37. Jenn Toby, 1 jacket
38. Camala Walling, 1 jacket
39. Jordan Lanham, 1 jacket
40. Josh Miller, 1 jacket
41.  Te'j Matthews, 1 jacket
42.  Tony Zieger, 1 jacket
43.   Shannon Shine, 2 jackets
44.   Melody Smith. 4 jackets
45.  Kay Seurat, 1 jacket
46.  Danny McGinnest Jr., 5 jackets

For more information about joining the movement or to see all 400 plus jackets, please scroll to the bottom of this post.

The Walking Gallery members who had jackets painted in Year Seven:

485. Vera's Art

484. "The Meaning of the Law" a jacket for Matt Fisher 

483. "Join Us" a jacket for Brian Mack painted by Melody Smith

482. "20+ weeks" a jacket for Tara Dimopoulos Bick 

481. "12 Steps" a jacket for Ashley Elliott

480. "There is Always Hope" a jacket for Panha Chheng

479. ¿QuĂ© tienes?" a jacket for Ignacio Edlm

478. "Love everlasting for all of Eternity" a jacket for Soojin Jun

477."The Ocean of Need" a jacket for Felicia Schrock

476."The Patterns That Surround Us." a jacket for Aaron Seib

475. "Are you for change?" a jacket for Jason Grattini

474. "The Futurist" a jacket for Bertalan Mesko

473. "Condensing a Life" a jacket for Pat Rioux

Read: to understand the origin of the Walking Gallery. to understand the sacred nature of this path

To view the jackets in year one 1-162

To view the jackets of year two 163-251
To view jackets of year three 252-328

To view jackets of year four 329-393

To view jackets of year five 394-430